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Finding Sanity in Community: Jess' Story
My hypnic jerking started in 2018 though at the time I didn’t know that's what it was called. To give a short background of my life-I have never been on any pharmaceutical drugs, haven’t had antibiotics since I was a kid. Delivered all 4 babies naturally, un-medicated, never had any sleeping issues. No health issues. The only thing I have seen doctors for is delivering my babies! I will notate that we moved into a new house in 2014 that I had been having allergies in. We move
Mar 19, 20213 min read


Hypnic Jerking Treatment Indications: Highlighting Acetazolamide/Diamox
Genetics, informing use of Diamox: In this article on central nervous system channelopathies, the below figure and table lists the genetic mutations along with the corresponding body systems and medications that treat them. Several people in the hypnic jerking group have received epilepsy genetic panel screens (you do not need to be having “seizures” to have an epilepsy genetic panel run). The identified mutations of group members indicate that Diamox could be an appropriate
Mar 8, 20214 min read


Hypnic Jerking and Sleep: What Worked for Me: Chris' Story
My nervous system shoots a jolt of electricity down my spine that convulses my body awake every time I reach the moment of sleep onset,...
Mar 1, 20212 min read


How Hypnic Jerking Changed My Life: Therese's Story
Four years ago, I was living the life I dreamed of and worked hard to get. I had earned my master's degree, was married to the love of...
Mar 1, 20212 min read


My Quest for Drug-Free Sleep: Jessica's Story
My life dramatically changed on Easter Day, 2015. That was the night I went to bed and never experienced the feeling of “normalcy” again....
Mar 1, 20214 min read


New Study: Cells and Chemicals Involved with Sleep Transition.
In the article "Twinkling, star-shaped brain cells may hold the key to why, how we sleep". It's amazing how little we know about sleep. Transitioning to sleep involves cellular calcium signaling. “The findings of this study suggest that we may have been looking in the wrong place for more than 100 years," said senior author and professor of biomedical sciences Marcos Frank. "It provides strong evidence that we should be targeting astrocytes to understand why and how we sleep,
Jan 27, 20211 min read


How to See Evidence of Hypnic Jerking on sleep testing Polysomnogram EMG
Hypnic Jerking has had many names and has been hard to detect on testing. The diagnosis is easily overlooked because the involved muscle groups are small. This article sheds light on how to view evidence of the condition. "Excessive fragmentary myoclonus (EFM), previously called excessive fragmentary hypnic myoclonus, is defined by the American Academy of Sleep Medicine (AASM) as at least five characteristic fragmentary myoclonus electromyographic potentials per minute during
Jan 27, 20211 min read
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