Suggestions for Relief from Hypnic Jerking
Below are 10 suggestions representing some of what has worked with people from our Facebook community threads. It is not meant to be...
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Feb 201 min read
KB's Story (as told by her mother)
Our 2-year-old daughter has been having Hypnic jerking since she was 4 weeks old. She’s had 3 EEGs, and seen 5 neurologists, 2 sleep...
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Feb 51 min read
Links to Hypnic Jerking Articles
Propriospinal Myoclonus: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736211/ Surgical Treatment of Propriospinal Myoclonus:...
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Apr 27, 20235 min read
Hope Found Here: Elainne's story
While preparing to write my story, I reviewed the journal which I have kept for four years, now totaling 100 pages. On August 27, 2018,...
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Mar 5, 20233 min read
My Taper Journey (Austin)
My Clonazepam Taper This is a long post about my clonazepam taper. It’s my experience. Yours may differ. None of it is intended as...
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Sep 13, 20212 min read
Is Hypnic Jerking a Blood Pressure Issue? The Case of Angiotensin Conversion...
Angiotensin is a protein hormone that causes blood vessels to become narrow. It helps us to maintain blood pressure and fluid balance in...
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Jun 11, 20212 min read
What may be responsible for the jerks?
To a large extent, the science of sleep has remained a mystery. Let’s look at the role of the spine and the brain for a moment. We know...
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Jun 6, 20211 min read
About CoRDS
Bringing together patients and researchers to accelerate rare disease treatments by building the most robust, cost-free rare disease...
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Jun 6, 20211 min read
Researcher Access to Study Data
Dear CoRDS Partners, We hope you all are doing well and your new year is off to a great start. As you have noticed, CoRDS has been...
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Jun 6, 20211 min read
Update Your CoRDS Information
Have you updated your Sanford CoRDS survey? Please update your survey responses when something changes or otherwise annually. You will...
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Jun 6, 20211 min read
Find a Physician
You might find these practitioners helpful along your journey. Find an Atlas Orthogonal doctor https://atlasorthogonality.com Find a...
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Jun 6, 20211 min read
Hypnic Jerking "Press Kit"
When you come across an interested researcher or physician, here is what you can share: 1. The google link to HJ (Hypnic Jerking) videos....
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Jun 6, 20211 min read
Can Melatonin Help Hypnic Jerking?
Calcium Dysregulation and Melatonin: See earlier blog entry regarding calcium cell signaling driving sleep entry. Can more answers be...
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Jun 1, 20212 min read
Application of Topical Lidocaine Addressing Channelopathy: Can We Draw Evidence from Neural Therapy?
We have been having some positive responses to the application of lidocaine. I have often wondered why a person struggling from...
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Mar 19, 20213 min read
Finding Sanity in Community: Jess' Story
My hypnic jerking started in 2018 though at the time I didn’t know that's what it was called. To give a short background of my life-I...
486 views0 comments
Mar 8, 20214 min read
Hypnic Jerking Treatment Indications: Highlighting Diamox
Genetics, informing use of Diamox: In this article on central nervous system channelopathies, the below figure and table lists the...
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Mar 1, 20212 min read
Hypnic Jerking and Sleep: What Worked for Me: Chris' Story
My nervous system shoots a jolt of electricity down my spine that convulses my body awake every time I reach the moment of sleep onset,...
540 views0 comments
Mar 1, 20212 min read
How Hypnic Jerking Changed My Life: Therese's Story
Four years ago, I was living the life I dreamed of and worked hard to get. I had earned my master's degree, was married to the love of...
626 views1 comment
Mar 1, 20214 min read
My Quest for Drug-Free Sleep: Jessica's Story
My life dramatically changed on Easter Day, 2015. That was the night I went to bed and never experienced the feeling of “normalcy” again....
477 views0 comments
Jan 27, 20211 min read
New Study: Cells and Chemicals Involved with Sleep Transition.
In the article "Twinkling, star-shaped brain cells may hold the key to why, how we sleep". It's amazing how little we know about sleep....
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