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Jan 27, 20213 min read
Suggestions for Relief from Hypnic Jerking
Below are 10 suggestions representing some of what has worked with people from our Facebook community threads. It is not meant to be...
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Feb 20, 20241 min read
KB's Story (as told by her mother)
Our 2-year-old daughter has been having Hypnic jerking since she was 4 weeks old. She’s had 3 EEGs, and seen 5 neurologists, 2 sleep...
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Feb 5, 20241 min read
Links to Hypnic Jerking Articles
Propriospinal Myoclonus: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736211/ Surgical Treatment of Propriospinal Myoclonus:...
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Apr 27, 20235 min read
Hope Found Here: Elainne's story
While preparing to write my story, I reviewed the journal which I have kept for four years, now totaling 100 pages. On August 27, 2018,...
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Mar 5, 20233 min read
My Taper Journey (Austin)
My Clonazepam Taper This is a long post about my clonazepam taper. It’s my experience. Yours may differ. None of it is intended as...
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Sep 13, 20212 min read
Is Hypnic Jerking a Blood Pressure Issue? The Case of Angiotensin Conversion...
Angiotensin is a protein hormone that causes blood vessels to become narrow. It helps us to maintain blood pressure and fluid balance in...
207 views0 comments


Jun 11, 20212 min read
What may be responsible for the jerks?
To a large extent, the science of sleep has remained a mystery. Let’s look at the role of the spine and the brain for a moment. We know...
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Jun 6, 20211 min read
About CoRDS
Bringing together patients and researchers to accelerate rare disease treatments by building the most robust, cost-free rare disease...
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Jun 6, 20211 min read
Researcher Access to Study Data
Dear CoRDS Partners, We hope you all are doing well and your new year is off to a great start. As you have noticed, CoRDS has been...
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Jun 6, 20211 min read
Update Your CoRDS Information
Have you updated your Sanford CoRDS survey? Please update your survey responses when something changes or otherwise annually. You will...
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Jun 6, 20211 min read
Find a Physician
You might find these practitioners helpful along your journey. Find an Atlas Orthogonal doctor https://atlasorthogonality.com Find a...
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Jun 6, 20211 min read
Hypnic Jerking "Press Kit"
When you come across an interested researcher or physician, here is what you can share: 1. The google link to HJ (Hypnic Jerking) videos....
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Jun 6, 20211 min read
Can Melatonin Help Hypnic Jerking?
Calcium Dysregulation and Melatonin: See earlier blog entry regarding calcium cell signaling driving sleep entry. Can more answers be...
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Jun 1, 20212 min read
Application of Topical Lidocaine Addressing Channelopathy: Can We Draw Evidence from Neural Therapy?
We have been having some positive responses to the application of lidocaine. I have often wondered why a person struggling from...
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Mar 19, 20213 min read
Finding Sanity in Community: Jess' Story
My hypnic jerking started in 2018 though at the time I didn’t know that's what it was called. To give a short background of my life-I...
492 views0 comments


Mar 8, 20214 min read
Hypnic Jerking Treatment Indications: Highlighting Diamox
Genetics, informing use of Diamox: In this article on central nervous system channelopathies, the below figure and table lists the...
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Mar 1, 20212 min read
Hypnic Jerking and Sleep: What Worked for Me: Chris' Story
My nervous system shoots a jolt of electricity down my spine that convulses my body awake every time I reach the moment of sleep onset,...
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Mar 1, 20212 min read
How Hypnic Jerking Changed My Life: Therese's Story
Four years ago, I was living the life I dreamed of and worked hard to get. I had earned my master's degree, was married to the love of...
647 views1 comment


Mar 1, 20214 min read
My Quest for Drug-Free Sleep: Jessica's Story
My life dramatically changed on Easter Day, 2015. That was the night I went to bed and never experienced the feeling of “normalcy” again....
485 views0 comments


Jan 27, 20211 min read
New Study: Cells and Chemicals Involved with Sleep Transition.
In the article "Twinkling, star-shaped brain cells may hold the key to why, how we sleep". It's amazing how little we know about sleep....
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