Reframing Chronic Hypnic Jerks Through A Neurovascular Lens — Informed by Case Study and Group Trends Disclaimer The attached manuscript has not yet been peer-reviewed.   It is intended for early sharing and discussion. For feedback or inquiries, please contact the author at the address below. Posted:  [6/23/25], Version:  [5.2/final] Review, sharing, and constructive feedback from patients, clinicians, and researchers are encouraged to support the ongoing refinement of thi

Below are 10 suggestions representing some of what has worked with people from our Facebook community threads. It is not meant to be medical advice and should be reviewed by your medical practitioner. We have many similar patterns. However, each case seems to be slightly different. We are trying to get more research going because so little has been done to figure out how to best address this. Information below is from my close to two decades research on the topic. Its biggest

My hypnic jerks began suddenly in July 2022, shortly after a traumatic event and a COVID infection earlier that year. Every time I fell asleep, it felt like a defibrillator shocked me awake —a violent full-body jolt followed by an intense adrenaline surge. This repeated for hours each night. Over time, the jerks evolved into falling sensations, body twitching, and repeated sleep-onset adrenaline surges. Alongside them came a cluster of symptoms that felt almost PTSD-like: hea

A sample..

Background Hypnic jerks are generally viewed as benign, transient motor events at sleep onset. In rare cases, however, they evolve into...

Novel Treaments

Agenda — Meeting #6 1. Drafting response to Neurosom email if we are to pursue 2. Erika meeting follow-up (no follow-up yet;...

Goals of Research Team Define what (excessive fragmentary) hypnic jerking is by developing and testing SOVM  (Sleep-onset...

Voltage Gated Ion Channels and Sleep. The Journal of Membrane Biology  (Volume 257, Issues 5–6, Pages 269–280) published December 2024,...

09/20/2025 Next-Gen Disease Screen (NGDS) & Related Tools Next-Gen Disease Screen (NGDS) • NGDS screens hundreds of genetic markers for...

Thanks to “Team HJ” patients, we’ve added a major supporting article and an additional team member!

SOVM Meeting #5 — Minutes & Action Plan          ​​     Attendees: • Dr. Giuseppe Lanza — neurology; sleep-related movement disorders;...

Septemeber 5, 2025 Dr. Erika says she would like to have a first meeting with folks who have their genetics returned to teach them what...

Article Integration Summary – SOVM Sleep-Onset Oscillatory Vasomotor Myoclonus 1. RAAS in PTSD: ACE and ARBs Reduce Symptoms (J Clin...

Erika Schwarz Taylor, PhD (Texas State University) — Genomics & Data Strategy Lead Genomic Data Analysis: Organize and interpret WGS,...