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Sleep-Onset Vasomotor Myoclonus:
Reframing Chronic Hypnic Jerks Through A Neurovascular Lens — Informed by Case Study and Group Trends Disclaimer The attached manuscript...
May 171 min read
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Suggestions for Relief from Hypnic Jerking
Below are 10 suggestions representing some of what has worked with people from our Facebook community threads. It is not meant to be...
Jan 27, 20213 min read
3,044 views
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KB's Story (as told by her mother)
Our 2-year-old daughter has been having Hypnic jerking since she was 4 weeks old. She’s had 3 EEGs, and seen 5 neurologists, 2 sleep...
Feb 20, 20241 min read
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Links to Hypnic Jerking Articles
Propriospinal Myoclonus: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736211/ Surgical Treatment of Propriospinal Myoclonus:...
Feb 5, 20241 min read
87 views
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Hope Found Here: Elainne's story
While preparing to write my story, I reviewed the journal which I have kept for four years, now totaling 100 pages. On August 27, 2018,...
Apr 27, 20235 min read
611 views
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My Taper Journey (Austin)
My Clonazepam Taper This is a long post about my clonazepam taper. It’s my experience. Yours may differ. None of it is intended as...
Mar 5, 20233 min read
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Is Hypnic Jerking a Blood Pressure Issue? The Case of Angiotensin Conversion...
Angiotensin is a protein hormone that causes blood vessels to become narrow. It helps us to maintain blood pressure and fluid balance in...
Sep 13, 20212 min read
212 views
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What may be responsible for the jerks?
To a large extent, the science of sleep has remained a mystery. Let’s look at the role of the spine and the brain for a moment. We know...
Jun 11, 20212 min read
431 views
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About CoRDS
Bringing together patients and researchers to accelerate rare disease treatments by building the most robust, cost-free rare disease...
Jun 6, 20211 min read
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Researcher Access to Study Data
Dear CoRDS Partners, We hope you all are doing well and your new year is off to a great start. As you have noticed, CoRDS has been...
Jun 6, 20211 min read
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Update Your CoRDS Information
Have you updated your Sanford CoRDS survey? Please update your survey responses when something changes or otherwise annually. You will...
Jun 6, 20211 min read
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Find a Physician
You might find these practitioners helpful along your journey. Find an Atlas Orthogonal doctor https://atlasorthogonality.com Find a...
Jun 6, 20211 min read
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Hypnic Jerking "Press Kit"
When you come across an interested researcher or physician, here is what you can share: 1. The google link to HJ (Hypnic Jerking) videos....
Jun 6, 20211 min read
87 views
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Can Melatonin Help Hypnic Jerking?
Calcium Dysregulation and Melatonin: See earlier blog entry regarding calcium cell signaling driving sleep entry. Can more answers be...
Jun 6, 20211 min read
276 views
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Application of Topical Lidocaine Addressing Channelopathy: Can We Draw Evidence from Neural Therapy?
We have been having some positive responses to the application of lidocaine. I have often wondered why a person struggling from...
Jun 1, 20212 min read
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Finding Sanity in Community: Jess' Story
My hypnic jerking started in 2018 though at the time I didn’t know that's what it was called. To give a short background of my life-I...
Mar 19, 20213 min read
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Hypnic Jerking Treatment Indications: Highlighting Diamox
Genetics, informing use of Diamox: In this article on central nervous system channelopathies, the below figure and table lists the...
Mar 8, 20214 min read
784 views
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Hypnic Jerking and Sleep: What Worked for Me: Chris' Story
My nervous system shoots a jolt of electricity down my spine that convulses my body awake every time I reach the moment of sleep onset,...
Mar 1, 20212 min read
564 views
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How Hypnic Jerking Changed My Life: Therese's Story
Four years ago, I was living the life I dreamed of and worked hard to get. I had earned my master's degree, was married to the love of...
Mar 1, 20212 min read
681 views
1 comment


My Quest for Drug-Free Sleep: Jessica's Story
My life dramatically changed on Easter Day, 2015. That was the night I went to bed and never experienced the feeling of “normalcy” again....
Mar 1, 20214 min read
503 views
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