My hypnic jerks began suddenly in July 2022, shortly after a traumatic event and a COVID infection earlier that year. Every time I fell asleep, it felt like a defibrillator shocked me awake —a violent full-body jolt followed by an intense adrenaline surge. This repeated for hours each night. Over time, the jerks evolved into falling sensations, body twitching, and repeated sleep-onset adrenaline surges. Alongside them came a cluster of symptoms that felt almost PTSD-like: heart pounding...

SOVM Meeting #5 — Minutes & Action Plan ​​ Attendees: • Dr. Giuseppe Lanza — neurology; sleep-related movement disorders; editorial boards (PLOS ONE, BMC Neurology, MDPI) • Dr. Jay Lombard — neurology/psychiatry; ion-channel & neurodegeneration focus; glymphatic/CSF interest • Tracy Hans — patient-research lead; registry/cohort coordinator. Not in attendance: • Erica Schwarz Taylor — genomic analysis (Texas State Univ., sequencing.com liaison) • Prof. Lyn Griffiths — ion-channel...

Septemeber 5, 2025 Dr. Erika says she would like to have a first meeting with folks who have their genetics returned to teach them what...